Hannah saw the pediatric neurologist yesterday. We are scheduled for a 48 hour outpatient EEG next week. We will go to the hospital an hour away and have the leads attached to her and she will receive a backpack that will be her best friend for two days. She will wear the the testing gear for 48 hours and we will return early Friday morning to have them removed.
I have mixed feelings because I don't want her to be having seizures, but I want something to happen in the 48 hours so we can tell what is going on. I hope the eye dilation happens, so we can see if it is fight or flight or seizures. We are going to record times that we see events happen, so the doctor can check those times first when he is reviewing the thousands of pages of results he will receive.
Good luck with that! We are doing this with Lauren for 72 hours later this week to make sure her seizures are under control so we can proceed with dealing with other medical issues.
ReplyDeleteI totally understand your mixed feelings about this. I also know what it is like to have a kid who you know has some sort of issue either physical or psychological and you do not know what it is. That is a place where we have been for far to long and it is difficult to work with.
Hope you get some answers. I know Jackson and Delaney have brain damage from their rough start and I would love to see it on film. It would be so nice to know what their brain issues are verses their heart issues. So hard to parent a child with mental illness without knowing.
ReplyDeleteI cross my fingers for this 48 hours EEG.
ReplyDeleteI can relate on the mix feelings. However, don't worry too much on it, because you can't change the EEG results.
In one side, if the eyes dilatation are seizures, better to know it, so she can get the appropriate medication.
If she has seizures and is not treated for the seizures, it can grossly impair her learning.
If she has seizures, it will be a chance to know it in order to treat it.
Also, FYI, psychiatric medicines can lower the epileptogenic threshold. Some people who are usually seizure free can have seizures while taking psychotropic medications.
Also, if Hannah has seizures, ADHD meds or not, doctors have to be careful with Focalin because to some people, it can trigger the seizures. Of course, not to everyone, but it may happen to some persons.
Don't hesitate to speak up with her neurologist about this topic.