We have taken Hannah off of her Foc*alin this week because of her scheduled 48 hr EEG this week.
I have been reminded already this morning of what life was like before the meds. If this is how the rest of our week is going to go, she will stay on her meds 12 months of the year, everyday. She is having a very difficult school morning already. She has the totally stressed look on her face this morning. I am giving instructions and she looks at me like I spoke them in another language. The good news is that Haylee is able to repeat them to her for me. So, she is listening.
Please pray for us this week. The good, but bad news, is that maybe off the medicine, we will have an incident, whatever it may be.
oh!!! Hope it doesn't get much worse. Courage. It's only for a week, right?!
ReplyDeleteI am cheering for all of you. There are some people who really do need to be on meds in order to succeed. I was one of those mom`s who tried so hard to live without the meds, but you know there comes a time where enough is enough so they are on them and we do not realize how much good they are doing until we have to go without them for awhile.
ReplyDeleteThe meds make such a difference. It is so easy to forget what things were like before meds but even one day off and you remember oh too well. One week, a whole week... I will pray for you. LOL You can do it but you might have to expect a bit less this week. Seriously, she is sick...remember that. Without her meds she is not CAPABLE of performing the same. The meds are obviously necessary and you never have to question that again.
ReplyDeleteWe made it through the day. It was not terrible. Today shows me once again how far we have come and how much it due to medicine. Yes, it is sad to me, but it is life. I tried to live without meds also, but the twins changed my entire perspective on meds.
ReplyDeleteJenny,
DeleteI know it's hard for you. But if Haylee and Hannah were having diabetes, asthma, high blood pressure or whatever, life wouldn't be sad because they need medicines. They need medicines because both have a chronic disease.
No one tells you that it's sad for a diabetic child to thrive with insulin.
If your children were suffering from arrhythmia, would you think that it's sad that they thrive under medicine ?
It's no more sad that your children thrive better with their ADHD medicine than without. ADHD is no more less a "real" illness, not an invented diagnosis to dismiss yourself from your parental role (how often did I hear such a sentence ? Too often to count, I reply to those so told experts to come and manage my life for a month without my medicines. Then, they'll be able to have an opinion).
They need this medicine in order to be able to function in life, like someone with arrhythmia needs to take medicines in order to keep the arrhythmia under control.
I learnt to consider my ADHD and its constraint like if I were having diabetes, arrhythmia, asthma or so...
If I need my ADHD medicine to have the ability to function, be it. It's a constraint, yes. But it doesn't make me a "less person", and my mom is not "less a mom" than if I needed insulin for diabetes, medicines for asthma, antiarhythmic for arrhythmia etc etc...
I swore myself that if someone else tells me that "my mom is less a mom because ADHD is a fake diagnosis for parents not to love their children", I won't let him behave like that. Maybe with two pairs of slaps, he will understand...
I often think about my friend with Alport syndrome. She has ESRD (End Stage Renal Disease), and she can become deaf and/or blind because of this syndrome.
She started dialysis at 13 years old, and when she has no transplant, she needs to dialyze or she simply dies.
I feel lucky that I have "only" ADHD and Single Sided Deafness.