Day 2

Hannah slept pretty well last night.  We went to the hospital today.  They said we need to wear it one more day.  They saw something that may be "muscle artifacts".  I am not sure what that is, but they want her to close her eyes and rest for ten minutes every hour.  So, we will do this and return tomorrow.

The good news is they needed us to wear it longer so they didn't see anything obvious.  The bad news is that she has to wear it another twenty-four hours.  She is LOVING the attention.  However, too much attention and she starts to "play dumb".  She was strongly corrected a few minutes ago for her actions.  She got really angry.  Yes, I told her to turn around so I could get the time off the machine to record her emotions.  She didn't like that at all.  Probably because someone else will know besides me that she was so angry at me. 

EEG

We are at the hospital getting hooked up for the EEG. We will have to come back tomorrow and Friday. I pray this shows something. The nurse said if it shows something tomorrow we can stop. Praying for answers!

I am proud of her.

Hannah started with a rough day.  However, she got it together and her day turned out okay. I am proud of her.  She did complete her school and did okay with it all.   I have definitely had to parent her differently today.  She hasn't wanted to cooperate at times, so I have had to have strict boundaries.  She is currently driving Morgan nuts again following her around.  (She follows Morgan whether she is taking meds or not.)  She will start back on her meds Saturday morning. It was a good test run. 

We are working out a plan for Morgan to have her own room.  We will either give up the school room or the boys will share a room.  I know the boys are teenagers and they don't like to share a bed, but it is a king size bed.  My husband said it well.  He said Morgan has shared and given up a lot in the last two years, the boys can give up some now.  I think that is reasonable.  We may try moving them in together and if doesn't work, then move Alex into the school room.


What fun!! (NOT)

Medicine

We have taken Hannah off of her Foc*alin this week because of her scheduled 48 hr EEG this week. 

I have been reminded already this morning of what life was like before the meds.  If this is how the rest of our week is going to go, she will stay on her meds 12 months of the year, everyday.  She is having a very difficult school morning already.  She has the totally stressed look on her face this morning.  I am giving instructions and she looks at me like I spoke them in another language.  The good news is that Haylee is able to repeat them to her for me.  So, she is listening. 

Please pray for us this week.  The good, but bad news, is that maybe off the medicine, we will have an incident, whatever it may be. 

One of those days...

Today has been one of those homeschooling days where a student is mad at me because her school work is wrong.  She normally will look back and find the correct answers.  Not today.  She wanted me to give her the answers.  I just love it when she tells me it can't be wrong and gets mad at me.  She doesn't like it when  I call things as they appear.  She starts saying things that don't make any logical sense.   At least she didn't lie.  She agreed that she was mad at me.  Oh, how I wish we had the EEG stuff on today.  Needless to say, she has school work left to finish tonight. 

I told my husband that we were entering another cycle.  It started with the poor choices she made which she  is now serving restitution for to her siblings. 

Today was not a good school day for her.  Haylee did well today.  Morgan started out no so well, but was able to turn things around.  

They are at the group classes now.  I hope they go okay.

Thank goodness that everyday is a new day and a fresh start for everyone.

Neurologist

Hannah saw the pediatric neurologist yesterday.  We are scheduled for a 48 hour outpatient EEG next week.  We will go to the hospital an hour away and have the leads attached to her and she will receive a backpack that will be her best friend for two days.  She will wear the the testing gear for 48 hours and we will return early Friday morning to have them removed. 

I have mixed feelings because I don't want her to be having seizures, but I want something to happen in the 48 hours so we can tell what is going on.  I hope the eye dilation happens, so we can see if it is fight or flight or seizures.  We are going to record times that we see events happen, so the doctor can check those times first when he is reviewing the thousands of pages of results he will receive. 

What's Up?

We are wondering what the trigger is for Hannah right now.  Is it Gotcha Day coming up on April 6th?  This is the time of year when a lot of her losses occurred.  She has committed basically the same offense for the third time in 5 days.  She is struggling with respecting the boundaries of others.  It may be walking through a closed door without knocking, writing on someone elses picture or putting on her sister's clothes without permission.   However, it is getting more and more obvious each time.  The punishment is getting a little bit worse each time also. However, none of the punishments have been that severe, in my opinion.

My husband and I are praying that God will give us the proper way to deal with the issues.  We have talked about the punishment, but aren't going to tell her until after church what it will be.  I am praying for a revelation during our praise and worship time today.